You Are Not Alone

Canada's Largest Long COVID Community

A hub for information and a support network for survivors, parents and caregivers to find viable information, resources and answers.

Recognition, Research and Rehabilitation.
Together we will find change!

Long COVID Kids Canada

A welcoming space for parents & guardians of children recovering from COVID-19 to connect while facing the same challenges & provides an opportunity for your experience to make a difference.

🧡💙❤️ All families are welcome. Positive PCR test not required.

Provincial Awareness

Provincial groups have been established for members to connect at a localized level. These hubs provide a targeted flow of information and news, including the latest research, opportunities and access to rehabilitation services.

Know what’s happening in your province.

COVID Caregivers Support

Are you a caregiver of a Long-Hauler? Caring for someone is both rewarding and frustrating. This can lead to feeling overwhelmed, which is common and understandable. Know that you are not alone!

Member requested. Member supported.

You Are Not Alone

Who Are Long-Haulers?

The Centers for Disease Control and Prevention has named this syndrome as post-acute sequelae of COVID-19 (PASC), and you will often see it called Long COVID or Post COVID Conditions. People living with these symptoms are sometimes referred to as COVID-19 long-haulers.

Long-haulers are individuals who still have persistent symptoms for 4 weeks or longer that are either continuous or arise weeks or months after initially recovering from COVID-19.

Many will suffer for months, and report prolonged, multisystem involvement and significant disability.

Some of the Long-Hauler symptoms include:

Tiredness or fatigue

Difficulty thinking or concentrating ("brain fog")

Difficulty breathing or shortness of breath

Dizziness on standing



Chest or stomach pain

Change in smell or taste

FP - Long Haulers

83% of people will have one or more symptoms longer than 4 - 12 weeks.

56% of people will have one or more symptoms longer than 12 weeks.